What is endometriosis?

Endometriosis is an often painful gynaecological disorder in which tissue that normally lines the inside of your uterus - the endometrium - grows outside your uterus. Painful symptoms can be especially severe during menstruation.

There is currently no known cure for endometriosis. However, if left untreated, endometriosis can lead to further complications like excessive bleeding, ovarian cysts, painful intercourse, infertility and multi-organ damage like lung collapse and kidney failure.

1 in 10

Approximately 10% of people of menstruating age are affected by endometriosis. This accounts for 5 to 15 percent, or 247.000, of all people of menstrual age in Sweden.

7.5 years

Is the average time people wait before receiving a proper diagnosis of endometriosis.

2/3 of people

With endometriosis begin showing symptoms before the age of 20.

90.000 SEK

Is the amount of money it costs per person per year due to absenteeism and lower efficiency at work because of endometriosis.

What is adenomyosis?

Adenomyosis is a condition of the uterus where the cells that normally form the lining on the inside of the uterus (endometrial tissue) also grow within the myometrium (the thick, muscular layer of the uterus).

The most common symptoms of adenomyosis include abnormal or heavy menstrual bleeding, severe menstrual cramps, pelvic pain, painful intercourse, spotting between periods, bloating and swelling, enlarged uterus, and infertility.

The only definitive “cure” for adenomyosis is hysterectomy.

0 Treatment Guidelines

Few clinical studies focusing on medical or surgical treatment for adenomyosis have been performed, no drug is currently labeled for adenomyosis, and there are no specific set guidelines to follow for the best management of adenomyosis symptoms.

1/3 of people

With adenomyosis are asymptomatic.

Difficult to Diagnose

There is no agreement on the classification of adenomyotic lesions from both the histopathology (microscopic examination of tissues from a biopsied or surgically removed specimen) and the imaging point of view. Therefore, diagnosis remains difficult and unclear.

Not Pre-Menopausal

Adenomyosis has typically been considered a condition among women who have given birth more than once and who are approaching menopause. However, as imaging technology has improved, it has been more increasingly identified in young menstruating persons with pain, abnormal uterine bleeding (AUB), infertility, and even no symptoms.

As High As 89.7%

Of people with endometriosis have adenomyosis.